A day out, an Uneasy mumsy Prospect ADHD -Anxiety 

As a parent you would be well versed in the art of preparing for a day out with the family or friends. What happens though and how do you prepare for a day out with a disabled child. For me by the time I get where we are going I look like a haggled miserable cow which can make me cranky so apologies in advance if ever I meet you on a day out…….

Feeding the swans, my heart was in mouth though

For me I find planning a day out really hard. Although our daughter is nearly 11 there is so much to think about

  • What time are we going, do we have hearing aids, are we dressed…I don’t know about your children but mine are typical slouch around until the last minute and then panic stations to get dressed. I usually get L motivated by having a race to see who can get dressed the quickest…I win most days 😊
  • Will she cope with where we are going…..Proberly not but perseverance is the key mum’s and dad’s!!! Keep repeating and try not to give in as if you have other children it’s not fair on them. This is hard but I use to give in all the time till my eldest said that I always changed the plans just because of L. Made me stop and think
  • How expensive is the day out? You see if I pay say £50 to get me and 4 children into an attraction how long will we manage to stay an hour, 2 hours? I tend to find free or very cheap but fun places like Redwings horse Sanctuary. 
  • What do I need to take… Soft toy, fiddle toys, baby wipes, snacks and drinks usually grace my rucksack…I gave up with having handbags as they became so heavy a good pretty rucksack to hide all the bits and bobs plus baby wipes and drinks and snacks for you as well as your children.
  • How far away is the destination…I have to factor in travel time so I can tell my daughter how long we will be, roughly how long we will stay. I try to show a map of where we are going or my daughter will now google it so she can see how far she is going. Sometimes this helps and sometimes it doesn’t but at least I have tried to keep some sanity for my own peace of mind. 

It’s time consuming and some days it’s mentally exhausting and quite often I just can not face the questions, the tears, the anxiety and the stress of leaving the house. I would love to take my girls out everyday but it’s just not that simple. I can get them up, dressed and out the door that’s not the problem, it’s the endless questions, my daughter getting anxious and frustrated that makes me feel is it really worth it. 

Our daughter with ADD and anxiety just does not cope with leaving the house. Even to see friends or people she has known since being a baby or having planned to go somewhere she knows well, this I find hard as most people don’t understand how hard it is some days and how hard it is to relax once we have arrived at our destination when all I really want to do is go home and go to bed and start again. 

I find it frustrating and upsetting as I feel my children have had a rubbish holiday due to not being able to go out as much as I would wish. You see ADD is not just a diagnosis on a piece of paper. It’s not an excuse or just another name for a naughty child. It’s bloody hard work, consuming, irritating, stressful, upsetting. It makes you feel as a parent a complete failure. It undermines family life even when you don’t want it to and the worst thing is that even as a parent there are days that you will blame yourself, your partner/husband and even your child for the emotions that you feel due to ADD. Anxiety also affects the whole family as well as being dehabilitating and scary for the individual. Anxiety has started to impact my daughter more and more the older she is getting and the more she figures the work out and understands a little more. The anxiety is because she feels out of her comfort zone, she can not cope with a change of scenery or me planning anything. As a mum I try to help by

  • Staying calm……. this is very hard to do when you have other children around. The anxiety felt by one child seems to have a wave effect and everyone feels sensitive to what is going on around
  • Try to plan….. harder said than done as life is flexible and plans are not ridged. I have started to write everything down for my daughter in a pocket diary so she can keep track of where she will be and what she is doing. If plans change though and as a busy mum I forget to alter the information then this idea works against me and I often feel I am back at square one
  • Don’t plan something for everyday……having a very busy schedule can work and going out most days can also help with hyperactivity and attention but I now feel that my daughter sometimes just needs days at home in her pj’s to play with her dolls and relax. Again this can backfire with sibling fights, boredom resulting in screamaing and stress but slowing the pace some days also gives me a chance to wind down and not have to be getting the kids ready and rushing about.
  • Don’t ask my daughter what she wants to do…..this could be construed as controversial but unless you are willing to do exactly what she has suggested you are just setting yourself up for a fall and an awful lot of stress if the activity they wish to do is not feasible. 

Sitting here now watching my daughter react to us going to the park this morning. She has known we are going for two days and up to last night it was all she could excitedly talk about but this morning the realisation has kicked in and my daughter is worried and rocking and hurting her younger sister because she is worried about who is going to be there, what time we are going, if it’s going to be wet, how long we will be, what can she take with her, anyone else have this?
It’s at times like this my heart breaks. My other children accept where we are going and can’t wait to go and have fun while L feels scared. Is it the right thing to take her out, how would I feel if I was made to go somewhere I really didn’t want to go….in honesty there is such a place and if I am told I need to go there my heart races, butterflies start up in my tummy, my palms get sweaty and my mouth feels dry. To have to feel these symptoms everyday for what you or I would deem trivial everyday life I just can’t fathom. I think my daughter is amazing to do the things she does and to have me making her do things though am I making her worse or helping her to overcome?

Days like this make it all worthwhile

Life with kids is amazing, awe inspiring, full of love, happiness, tiring, hard work, frustrating, heartbreaking, but we do our best we find what works and we do the best we can. It’s all we can do and even on bad days I hope my children know just how much I love them and how I would move heaven and earth if I needed to for them.

Happy Easter, hope you all get some rest and precious time with your children.

Xx Leanne xx

ADHD super Power….Hyper Focus

Sitting here listening to the steady beat of the raindrops outside I am transported to a place of quiet and relaxation and harmony. Hang on a minute its the half term holidays!!!!! whats going on even when my other three children are outside playing my daughter with ADD is always about hanging on my every word, movement, talking non stop, being bored wether she is medicated or not as she does not cope well with the change in routine that is the school holidays.

 Panic stations creep in maybe she has gone outside without me knowing or maybe she is downstairs with the scissors for art and omg I left her unsupervised ARGH

Heart in mouth I literally leg it downstairs and then stop dead. When will I learn….its nothing bad. You see 30 minutes ago I came upstairs while she was starting another one of her art projects. Art is her passion she loves to draw and make and show. Biased mummy that I am I even have some of her pictures on the wall framed. So amongst the turbulent feelings that split second of realisation has caused I realise I left my daughter to do arts and crafts and as far as I know she is still there. Of course this does not stop the panic… having a child who is impulsive means hardly a minute goes by without me worrying what she is going to do next and even though she is nearly 11 that has not changed, factor in the memory, concentration and emotional factors of ADHD/ADD its hard to grasp this alien concept that means she can stay focussed and in one place for more than 5 minutes.

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Art is definitely a Focus….

Whats this I hear you say….shes’s sitting still, concentrating, focused on one thing instead a myriad of different tasks in a matter of minutes. Maybe the ADD / ADHD is not there? Maybe its a misdiagnosis well no its actually something that is real and quite amazing and known by some as an ADHD super power…. Its called Hyperfocus…

What is Hyperfocus?

A short definition from http://www.healthline.com is

“Hyper focus is the experience of deep and intense concentration in some people with ADHD. ADHD is not necessarily a deficit of attention, but rather a problem with regulating one’s attention span to desired tasks. So, while mundane tasks may be difficult to focus on, others may be completely absorbing”

I can see why this symptom of ADHD could be misinterpreted. Heck I didnt even know it existed until I started a course in ADHD awareness. I was never told by the ADHD nurse about Hyper focus. I spent moments grappling with my decision to medicate and attend appointment’s when this symptom popped up, was I wrong was she in fact fine and not have a neurodevelopment disorder??  I thought she was just being stubborn. Talk about learning something new everyday and giving your self a heart attack. There is no way I would have put Hyper focus as part of the ADHD.

What does Hyper focus mean for my daughter and us?

Firstly hyper focus affects us all. This peculiar symptom of ADHD can cause arguments and stress within the family. My daughter is so focussed on the task at hand that sometimes its a real struggle to get her to move onto something else. In the case of art work this is fine I don’t mind her doing art for as long as she likes as she is expressing herself and learning from the environment but its when the hyper focus gets stuck on things like the maths games on the laptop. Again you would not necessarily think that would be an issue but when she is so focussed on finishing first one level then the next and so on and so on it is very difficult to try and get her to relinquish the laptop so that she can do reading which is just as important for her to do as it builds her knowledge of language and aides her language skills. Plus she becomes completely shut of from the world around her and as the definition says very absorbed, yes she is quiet but she also can’t answer questions and can become angry and frustrated if the laptop is taken away as it is every evening at least an hour if not more before bed.

Hyper focus can be viewed by some as an amazing ability and it is when its in the right context and its something that empowers my daughter. The amazing confidence and love that she has for the art that she does is an amazing thing. There are times that I love to sit and watch the magic take hold of her. Watching a picture emerge and seeing the focus and dedication she gives the project to make it the best she can is amazing. But for those of us around a child or adult who has it its also frustrating, annoying, upsetting, it winds up siblings, it quite frankly winds me up sometimes. Nasty arguments that can start as a result of someone trying to join in with my daughter are not for the faint hearted. Its almost like she is startled out of a trance and that invokes all sorts of feelings to bubble up due to the interruption, her concentration is broken and it can feel like hell on earth.

So Super power or not?

I think that it is a super power if it can be directed in a positive way but as with everything there will be days when the super power strikes and its the villain not the hero who has come out to play and to be honest i am not sure how I really feel about that…..

take care

x leanne x

 

 

ADD Our way…..Holistic Therapies can They Help?

When it comes to therapies in my mind the best ones are the Holistic ones. In situations where your child’s disability is not deemed significant enough for therapies through the health care system or if alternative treatment options are not offered or available Holistic massage is an avenue I would recommend. Massage is a fabulous therapy suitable for nearly all. Massage therapies are about healing the body and the mind using positive touch to receive tension and relax allowing the body to heal itself.

They have not only helped my children in ways explained below but they have also given me a purpose, something to concentrate on and a way to contribute to other parents and children living with disabilities.

As a parent trying to do the best for my children is always at the top of my list. I am their protector, their teacher as well as their mother. For me having disabled children has had a profound effect on who I have grown to become. Before the disabilities I worked full time, I then had children and went back to work part time. Work fitted around children until it came to the point where work no longer fitted around the myriad of hospital appointments. After finding Holistic therapies I decided to train in Holistic Massage with the main purpose being to aide mine and other children and their families .

As a parent I had never really considered the benefits of massage before, I used to have reflexology on my feet whilst pregnant but that was as far as my knowledge went although I was always intrigued as to how a therapist could tell I had a bad back from my feet and I always found it relaxing and felt better in myself afterwards. Massage has long been documented as having a profound positive effect on the mind and body as far back as 3000 years especially in the East.

Leanne Brown

So when I felt lost in a world of confusion and loneliness I began researching how best to help my child diagnosed with ADD while trying to understand what the diagnosis meant for my daughter. One answer that kept coming back was Holistic therapies and how the benefits of massage could really help with some of the symptoms. As a parent and a Therapist I have found the main benefits of Holistic and Indian head massage for a child with ADD are:

  • calming, aides deeper relaxed breathing
  • relaxes stiff, tired, tense muscles
  • aides concentration
  • aides sleep
  • aides circulation

There are lots more benefits for massage but for a child with ADD these are the most important benefits that they can receive from Holistic massage. My daughter has had regular holistic massage now for two years and while it is by no means a cure it has helped her considerably in times where nothing else has worked. Massage relaxes and calm’s which when you are on the go all the time and your mind struggles to switch off can be a god send. By relaxing and being able to settle her mind my daughter finds that her concentration unmedicated can improve as well as her overall wellbeing. I have found that my daughter can hold a lot of tension in her shoulders which leads to back and neck pain and headaches. Since having regular massage these symptoms have almost disappeared. Don’t get me wrong there are some days where massage just does not work or it can take an hour just to get her to sit still long enough but once she does the benefits far outweigh the negatives. My daughter is never forced to have a massage it is her choice and one that even as a parent I ask her permission. As a therapist I am client led which means I follow their lead.

 Massage should never been seen as something to be forced into but as a choice that the child can make for themselves. This chance to make a choice themselves empowers them and can lead to increased confidence. 


Another great therapy that we have found works well is Story Massage. This is where we put 10 easy and simple massage moves to her favourite songs and stories and the effects are positively fab!!! This type of Massage therapy is one the whole family can get involved with and can have a positive effect on family relationships especially the relationship between siblings which can be charged and strained at best. It gets the whole family having fun while using positive touch to bond. Something which can be difficult in todays society. Story massage also gives my daughter a voice, a way to channel her feelings and it enables her to tell me stories she has made up or how she is feeling as she is talking while giving me a massage……yes mums can have a story massage too!!!!

Find out more about our journey at http://www.leannesihm.wordpress.com

x Leanne x

 

Christmas Magic… ADD Mayhem

So Christmas is coming…..we started elf on the shelf mid November and been counting down since 98 sleeps till Santa. I feel all Santa’ed out already and we are only on the 1st December. How do I have a child who lives with short term memory problems but can remember every day that santa is coming soon? If I believed in magic I would say it’s magical but it is more down to obsession than it is fairy magic.

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Christmas Magic

What I do love about this time of the year is the enthusiasm and the magic that Christmas still holds for my daughter who has ADD (Attention Deficit Disorder) . She is 10 and still a firm believer that the elf comes alive at night and that santa brings her presents Christmas Eve. We have written and sent our Royal Mail letter to santa and she is eagerly awaiting a reply which in itself causes problems as she gets upset that the letter hasn’t arrived yet and very day I we wait I wonder if it was worth telling her and sending the letter.

In a society where most children grow up very fast I love that she is still able to hang onto a little childhood magic even if it does drive me mad. So top tips for managing a super excited ADD child 😊

  • Try not to curb their enthusiasm yes it’s only December 1st but if Christmas is something they are excited about I have discovered that it’s also a big motivator. Early elfs on the shelf truly can be magical especially if the elf does something naughty which the child relates to and it can even for a second make them realise a particular thing was naughty for example our daughter wrote on the wall so the elf wrote on her drawers in flour. She immediately told the elf off and so I explained that this situation was similar to what she had done. It’s baby steps to helping understanding.
  • Countdowns are great. Most phones can now down load sleeps to santa apps and these are great for ADD/ADHD for giving them a visual countdown. My daughter checks it several times a day but is comforted by the visual countdown.
  • Advent calendars we don’t tend to have. Tried them a few times and they got eaten in one day. This year I have decided to buy them one and use it as a reward but we shall see if it works otherwise it may be a case of mummy gets to eat lots of chocolate.
  • School holidays for us the kids break up on the 16th December this leaves a whole week of disturbed routine which will have an effect on how my daughter thinks and feels. This is when….”is it Christmas? when is santa coming?” Will start. I plan to have lots of activities and making days with them this week leading up to Xmas day. Yellow moon have lots of amazing craft sets that are very reasonably priced. This won’t solve the issue but will hopefully keep the kids entertained long enough for daddy to get home from work 😂
  • Wrap up warm and go for walks when the sun shines. Break up the monotony of a boring routineless day by getting out for even just a 10 minute walk. Remember when in school they have 15 minute break times. Try to emulate the structure of school as much as possible as this may help with the anxiety of them being at home and in close quarters with siblings.

Don’t get me wrong this holiday like any other will have me likely tearing out my hair with sibling arguements, behaviour issues, frustration and just down right anger but as always and as a mum I will do my best to keep the peace and try and ensure that everyone has a great Christmas. By the end of it I will need some serious pampering and so really need to get my massage treatment booked in ASAP 💆.

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You see there is no day off when you raise disabled children. The problems that are there don’t disappear on Christmas Eve. You still have to be a mum and dad and teach your children and comfort them and care for them. Supporting them in school, trying to get the right care for them, doing your best as a parents. If I was Scrooge I would say that Christmas just adds to the stress, anxiety and frustration especially for us parents. I haven’t even started wrapping presents yet and I have usually finished them by November. I have just been so caught up in my children’s needs and care, work and family that I just don’t have anymore to give at the minute. This makes me look like a miserable cow, someone that lets people down last minute but I just feel so weary and like I am holding my head just above the water. These are the dark days that I talk about in previous blogs. These are the days where I need my arse kicked by someone like my husband or sister. These are the days that are alright to feel, they are not wrong, they are not taboo but neither are they novel. It stinks to feel so crappy one minute and ok the next. But it does not make you a failure, it makes you stronger and it makes you a better parent.

Take care

X Leanne x

Learning to adapt and play

Play….such a simple, non threatening little four letter word but for me it can be like a volcano that’s waiting to erupt. As any parent of a child with ADD / ADHD knows finding an activity or toy that can provide even 10 minutes of concentration is like liquid gold. Concentration problems, memory issues, frustration, lack of understanding, impulsiveness can all case problems when it comes to play


Play is how our children learn and make sense of the world around them. From dolls and cars, games and building blocks, toys and games allow our children’s imaginations to run wild and learn. This is no different for a child with ADD. As a mum I am always on the look out for inexpensive fun and creative ideas of play. This has become harder the older my other children have gotten but it’s simple for my ADD daughter. Why, because it has taken me 5 years to work out her triggers, what amuses her (talking toys), what irritates her (board games) and what play activities are best to just completely avoid. 

There is no manual or written guide about this, it’s down to us as parents to discover unique and inspirational ways of entertaining our children. But with Christmas just round the corner maybe some idea’s here can help…….

  •  Play to your child’s strengths – for us this is our daughters artist side I always make sure to have on hand pens and paper, encourage their interests as this will give them much needed confidence.
  • Story massage – for us story massage is a family affair. The children can write their own stories and then massage each other using 10 simple moves. Story massage is an activity the whole family can get involved with and it can promote relaxation, imagination and confidence. (See previous blog for more info)
  • Try to avoid games and activities that you know can cause a negative reaction- for us this is board games, I got so fed up of them being thrown around the room I stopped buying them. Plus games that require more than 1 player can cause frustration, irritation, arguments, upset
  • Lego – Buy the bigger duplo sets – you may be told they are big and babyish but once the Lego has been played with and it’s time to put away, or if something happens and the legos gets thrown around the room….then the duplo is easier to find and clear up reducing your stress and frustration in having to find tiny bricks.
  • Outside – even in cold weather my daughter loves to be outside. This also allows her to let of steam so to speak as long as she is wrapped up warm she is outside discovering what a change in season does to the outside world around her and it gives you a 5 minute break so have a cuppa tea and breathe. 
  • Sensory toys – there is now a huge push for toys for disabled children which is great but when your child has an unseen disability this is hard. I have found that the cheap and inexpensive fiddle toys are invaluable. Stress balls (you can make your own) stretchy men anything that’s small (watch out for small parts) can entertain and keep little fingers busy.
  • Interactive toys – some of these last longer than others but I find with our daughter that if she can interact with a toy she is entertained for longer. Some toys now you can record messages on them which is great as kids respond to love and praise.
  • Wooden games/toys – the traditional wooden games and toys are more robust I feel for a child which may throw or have a habit of breaking. Food items for a shop, Wooden games such as Jenga can all withstand most things. 
  • Books – this was another hard one for me, to long and frustration would creep in and to boring I would get told to shut up 😡 pick books which your child is intrested in as it may hold their attention a little longer and do the funny voices….it keeps them entertain and allows a little longer before boredom creeps in. 
  • Allow for breakages – accidents wether intentional or not are going to happen. Yes it’s frustrating and yes you will feel angry and learning to accept this part is the hardest but working out a suitable punishment is key. I refuse to buy another once it’s gone it’s gone and while I still get shouted at my daughter knows this. 

For those who love to think outside the box diaryofaplayfulchild.wordpress.com has some great ideas that you can adapt for children with special needs and disabilities. We have adapted most of the ideas here and used them with an 10, 11, and 12 years olds with great effect. 

For us story massage, teddies and dolls bring the best play experiences. I have found that for toys my daughter is better fixed and focused on what she likes compared to her siblings. She can become almost obsessed by them though which can cause issues if it gets broken or goes missing. At the end of the day every child is different and are all into different things. My four are no different in this. 


Thank you for reading and please feel free to comment or follow my blog http://www.leannesihm.wordpress.com

 Take care all 

X Leanne x

Story, massage And us

I have spoken often in my blogs about Story massage and Indian head massage. Why? Because as a parent I firmly believe that these two therapies bring a host of advantages to our family life. Living with a child with Hearing loss, ADD and Anxiety can bring a lot of stress and frustration into our family and especially into my daughters daily life.

  • Behavioural problems
  • sleeplessness
  • impulsiveness
  • language and communication
  • unable to cope with emotions
  • unable to cope with routines
  • forgetfulness


I have found that massage can have a positive effect on all of these. Its not just my view point either there are so many articles on the use of massage with disabilities and special needs its a wonder that massage is not more widely available and obtainable by parents. Massage for us has been a life line, a way for all of our children to relax, de-stress and benefit from the healing power of massage as well. Its not just the disabled child that could benefit but sibling’s, parent’s, wider family member’s.

Have you ever been for a massage? For many of us through time and money restraints massage may not be possible, it was only ever a luxury I had had a few times since having children. You don’t need to go out and spend money though even just sitting with your children giving them a cuddle, playing with their hair can be just as relaxing. We bond through touch, we communicate and we reassurance with touch and we can soothe and relax through touch. I initially trained in Indian head massage as a way to help my own children. From there it has grown into a passion due to the benefits I have seen within my own family and its these benefits I hope to pass onto other children and parent’s.

Massage can….

  • Relax the body which reduces tension and stress
  • reduces anxiety
  • Soothes and comforts
  • Increases energy
  • aides concentration, respect, self awareness, relaxes the mind
  • reduce tiredness, soothe aching muscles

Last year while doing more research into massage I found a wonderful and interesting massage therapy called http://www.Story massage.co.uk 

This massage skill is an amazing activity to add to your family life. Story massage is simply 10 massage moves which you use against the backdrop of any nursery rhyme, story, poem, song. The list is endless and I have hours of fun making up my own stories for my children to enjoy. The best thing about story massage is that it is a skill the whole family can learn and enjoy together and it can last 5 minutes or 20 minutes.


As a mother I have found massage to

  •  aide Anxiety which is common in ADD/ADHD suffers
  •  aide relaxation for better sleep
  • reduce tension built up through Ticks and stress
  •  aide concentration and general self esteem
  •  aide those with Hyperactivity by helping the body and mind to calm and relax

The beauty of story massage is that you can tailor the story or song to your own child’s particular needs. We have stories about holidays, how important it is to eat, stories with my children’s names in them and stories about their individual disabilities. The best thing is there is no right and wrong and you can do it anywhere and anytime

  • bedtime
  • car journeys
  • on holiday
  • in a queue
  • at the doctors
  • mealtimes
  • when the routine changes
  • when there is quarrelling and boredom
  • rainy days

The list really is endless. Children as young as two can enjoy the stories and I have had a group of teenagers making up stories and then giving each other a massage 🙂 and one of my eldest wrote me a story massage for mothers day
My Super Mum by Charlotte, aged 11

My mum is like Super Mum, (The Circle)
always there when I need her. (The Circle)
She appears like a ninja all ready to help, (The Upwards Fan)
and swoops into save me when I’m feeling lost. (The Downwards Fan)

My mum is a Super Mum, a Super Mum she is (The Circle)
She sorts out my problems and listens to me (The Calm)
She shows me she cares, she makes me so happy (The Squeeze)
I feel all warm and fuzzy inside. (The Squeeze)

But sometimes I am naughty (The Drum)
Super Mum can shout – very loud (The Drum)
She tells me to be good, to be kind. (The Calm)
I want to grow up to be just like my Super Mum (The Circle)

My Super Mum brings magic and excitement (the Bounce)
I know how much she cares, she shows me everyday (The Circle)
So I wrote this for you, Mum (The Circle)
To show you how much I care. (The Calm)


As a therapist I do offer sessions in Story massage where you can learn the moves and share story massage with your children. Recently I won the Best Practise Award from Story massage and I feel immensely fortunate in being able to share these skills with other parents.

What ever you do tonight give your child a hug and share with them the power of positive touch

x leanne x

http://www.marshamholistictherapy.co.uk